MP to lead landmark debate on treatment of “devastating” disease

An MP will lead a landmark debate on the treatment of a “devastating” disease in the House of Commons today (Thursday 24th January).

Carol Monaghan, MP for Glasgow North West, will use the debate to call on the UK government to commit more funds for biomedical research into the condition and to put in place more appropriate care plans for patients.

It is the third debate Monaghan has led in the last year, following two smaller but widely supported debates in 2018.

In February, Monaghan led a Westminster Hall debate on the PACE trial, a controversial medical study into the condition which recommended treatments which have proved to be harmful to patients, which she called “one of the biggest medical scandals of the 21st century.”

Following a second Westminster Hall debate on the treatment and research into the disease in June, over 30 cross-party MPs backed Monaghan’s application for a full debate in the House of Commons.

Commenting ahead of the debate, Carol Monaghan MP said:

“The ME community has waited decades for their voices not only to be heard, but to be believed, and I am delighted to have secured this long overdue debate in the House of Commons.

“This will be the third debate on this issue in the last year. In June, the Public Health and Primary Care Minister assured me that he would ‘redouble’ his efforts for those with ME. Seven months on, I am keen to discover what it is he has done.

“The consequences of ME, and the lack of appropriate treatment for patients, are wide-reaching. Those with severe ME may spend their days in darkened rooms, unable even to watch TV or listen to music. Even touch is intolerable, and many are tube fed. For these individuals, ME is a life sentence – but a life spent existing, not living.